Building PROMIS item banks: librarians as co-investigators
نویسندگان
چکیده
منابع مشابه
Development of six PROMIS pediatrics proxy-report item banks
BACKGROUND Pediatric self-report should be considered the standard for measuring patient reported outcomes (PRO) among children. However, circumstances exist when the child is too young, cognitively impaired, or too ill to complete a PRO instrument and a proxy-report is needed. This paper describes the development process including the proxy cognitive interviews and large-field-test survey meth...
متن کاملUsing item response theory to enrich and expand the PROMIS® pediatric self report banks
BACKGROUND The primary objective was to enhance the content coverage of some of the pediatric self-report item banks for ages 8-17 years from the National Institutes of Health (NIH) Patient Reported Outcomes Measurement Information System (PROMIS®), and extend the range of precise measurement to higher levels of physical functioning. METHODS Data from 1,419 pediatric patients with cancer, chr...
متن کاملLeveraging pediatric PROMIS item banks to assess physical functioning in children at risk for severe functional loss
Background: Pediatric neuromuscular illnesses often result in decreased health-related quality of life (HRQL), notably in physical functioning. Generic HRQL measures have been developed for use in general populations, but may not adequately assess patients with severe functional loss. To address this measurement gap, we created two custom parent-proxy physical functioning short forms for use am...
متن کاملTwo-item PROMIS® global physical and mental health scales
Background: Self-reports of health provide useful information about function and well-being that can improve communication between patients and clinicians. Global health items provide summary information that are predictive of health care utilization and mortality. There is a need for parsimonious global health scales for use in large sample surveys. This study evaluates the reliability and val...
متن کاملBuilding Community Bridges for Health: Consumer Health Librarians as Health Advocates
Consumer health librarians can and must function as health advocates within their communities, fostering and strengthening local health initiatives by joining community partnerships and providing health resources. Through their unique and important role, health librarians of the twenty-first century will help push healthy community agendas. This article highlights strategies for health informat...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
ژورنال
عنوان ژورنال: Quality of Life Research
سال: 2009
ISSN: 0962-9343,1573-2649
DOI: 10.1007/s11136-009-9498-7